Palliative Care Research on the Island of Ireland

  1. Palliative Care Research Network (PCRN)
  2. PCRN Strategic Plan (2017-2022)
  3. PCRN - Research on the Island of Ireland
  4. PCRN Strategic Scientific Committee
  5. Members

Palliative Care Research Network (PCRN)

In 2012, AIIHPC established the Palliative Care Research Network (PCRN) to address the need for more collaborative multidisciplinary research in palliative care on the island of Ireland. This network was the first of its kind for palliative care in Ireland. 

The PCRN aims to offer the all-island palliative care research community opportunities to create and engage within a collaborative environment, supporting the development of excellent, high quality, clinically-relevant and innovative research projects that reflect, inform and contribute to the advancement of AIIHPC’s work programmes.

PCRN Members include leading researchers from AIIHPC’s partner organisations on the island of Ireland who focus on palliative care research from medicine, nursing, psychology, allied health, health economics, pharmacy and law disciplines. Our members come from many of the major research institutions including:

University College Dublin (UCD)

Trinity College Dublin (TCD)

Dublin City University (DCU)

Royal College of Surgeons Ireland (RCSI)

National University of Ireland Galway (NUIG)

University College Cork (UCC)

Queens University Belfast (QUB)

Ulster University(UU)

Hospice and Palliative Care Providers

University of Limerick (UL)

 

The Annual PCRN Symposium allows members opportunities to learn from global experts, share knowledge and network.

 

Benefits of Being a PCRN Member

The PCRN is constantly evolving and expanding and we want even more researchers to join and benefit from this collaborative community of peers.  Membership provides opportunities to:

  • Collaborate with senior researchers, clinicians, service users, policy makers and funders in palliative care and other relevant areas on the island of Ireland and internationally
  • Gain support for patient-public involvement through the AIIHPC Voices4Care research panel
  • Lead, mentor and build research capacity
  • Ensure research is relevant to global and national policy and practice priorities
  • Access AIIHPC’s proven experience in
  • Developing collaborative proposals
  • Building partnerships including those with patient-public involvement
  • Transfering knowledge to clinicians, educators, policy makers, service users and the wider community including via the palliative hub

Also, PCRN members provide mentoring and support to the Early Career Researcher Forum, a supportive network for early stage researchers in palliative care. If you are a leading researcher from one of our partner organisations with a focus or interest in palliative care research please apply to be considered eligible to become a member of the PCRN.

Annual reports for the PCRN are available for review at the following links: 

To enquire about the PCRN and how to become a member please email the Chair, Professor Joanne Reid (j.reid@qub.ac.uk) or AIIHPC Research Programme Manager, Dr Mary Rabbitte: mrabbitte@aiihpc.org

Download the PCRN Brochure


Palliative Care Research Network Strategic Plan (2017-2022)

In 2017 the Palliative Care Research Network (PCRN) launched a five year strategic plan. This strategic plan sets out a direction for the PCRN network, building and strengthening our research community and ensuring that research impacts at the local, national and international levels. The PCRN Strategic Plan (2017-2022) provides a framework for all those seeking to undertake palliative care research, from early career researchers to those leading and shaping international projects. Through this strategy the PCRN demonstrates its commitment to work collaboratively to strengthen palliative research, education, policy and practice on the island of Ireland and further afield. The plan has identified five strategic activity areas and actions that will be implemented over the 5 years to improve Quality of Life (QoL) for people with life limiting conditions through research that changes practice and informs policy. The five strategic activity areas are:

To learn more about the Palliative Care Research Network Strategic Plan (2017-2022) download the full document or to learn how the Strategic Plan was developed click on the Poster available at the following link: Developing the All-Ireland Institute of Hospice and Palliative Care (AIIHPC) Palliative Care Research Network Strategic Plan 2017 – 2022.

To view the implementation plan for 2018 download: Palliative Care Research Network Strategic Plan (2017-2022): 2018 Implementation Plan


PCRN - Research on the Island of Ireland

Between 2012 and 2017 the Health Research Board (HRB) in Ireland and AIIHPC invested €1.26m (£1.11m) in palliative care research. This investment supported senior and early career researchers on the island of Ireland to carry out research on the inequality of palliative care service delivery and measuring and evaluating palliative care outcomes:

Pathways toward Social Justice: Understanding Equality and Inclusion in Palliative Care (Research strand one): is based on the premise that inequality exists in relation to palliative and hospice care access and service delivery across the island of Ireland for people with serious mental illness, intellectual disability, children with non-malignant life-limiting conditions and advanced heart failure.

Watch this short video summarising this body of research by the lead principal investigator Professor Philip Larkin, Associate Professor of Clinical Nursing (Palliative Care), School of Nursing, Midwifery and Health Systems, College of Health Sciences, University College Dublin.

 

Click on the links below to learn more about the evidence-based knowledge generated from each research project:

Measurement and Evaluation of Outcomes for Palliative Care (Research strand two): explores methodological development for palliative care research with a focus on measurement of needs, measurement of impact and evaluation of service priority and delivery. 

Watch this short video summarising this body of research by the lead principal investigator Professor Charles Normand, Edward Kennedy Professor of Health Policy and Management, Centre for Health Policy and Management, Trinity College Dublin.

 

Click on the links below to learn more about the evidence-based knowledge generated from each research project:


Palliative Care Research Network Strategic Scientific Committee

The Palliative Care Research Network Strategic Scientific Committee is responsible for supporting the strategic development of the Network. In collaboration with All Ireland Institute of Hospice and Palliative Care, the Committee supports the management of proposals for activities and programmes of work for the Network. The Committee’s membership includes representatives from academic institutions, hospices, members of the Voices4Care Research Panel (Voices4Care is AIIHPC’s service user, carer and interested citizen group and within this group there is a Research Panel subgroup) and health funding organisations across the island of Ireland.

The PCRN Strategic Scientific Committee meets four times per year:

Meeting schedule for 2018:
21 March (Wednesday) 1:30 – 3:30pm
5 June (Tuesday) 12:00 – 2:00pm
18 September (Tuesday) 1:30 – 3:30pm
4 December (Tuesday) 1:30 – 3:30pm


Members

Strategic Scientific Committee

  • Prof Kevin  Brazil, School of Nursing and Midwifery, Queens University Belfast.
  • Prof Alice Coffey, Chair in Nursing & Midwifery, University of Limerick. 
  • Dr Michael Connolly, Assistant Professor, School of Nursing and Midwifery, University College Dublin.   
  • Dr Nicola Cornally, Lecturer, School of Nursing and Midwifery, University College Cork
  • Dr Frank Doyle, Senior Lecturer in Psychology, RCSI, Dublin.
  • Dr Lisa Graham-Wisener, Research Lead, Marie Curie Centre Belfast .
  • Dr Suzanne Guerin, Associate Professor, School of Psychology, University College Dublin (Vice-Chair of PCRN).
  • Dr Geralyn Hynes, Associate Professor, School of Nursing and Midwifery, University of Dublin Trinity College.
  • Dr Bridget Johnston, Postdoctoral Research Fellow, University of Dublin Trinity College.
  • Dr Gail Johnston, Programme Manager, HSC R & D Division, Public Health Agency, Belfast.
  • Mr John Joyce, Voices4Care Member.  
  • Professor Sonja McIlfatrick, Head of School of Nursing, Ulster University.
  • Ms Annie McHale, Voices4Care Member.                    
  • Professor Charles Normand, Centre for Health Policy and Management,  University of Dublin Trinity.
  • Dr Norma O'Leary, Consultant in Palliative Medicine, St James/Our Lady's Hospice, Dublin.
  • Dr Martina O'Reilly, Head of Education, Research & Quality, Milford Care Centre, Limerick.          
  • Professor Eamon O'Shea, Irish Centre for Social Gerontology, National University of Ireland, Galway.
  • Professor Sheila Payne, Chair in Hospice Studies, Director of the International Observatory on End of Life, United Kingdom.
  • Professor Joanne Reid, Queen's University Belfast (Chair of PCRN).
  • Professor Anthony Staines,  Department of Nursing and Human Sciences, Dublin City University.           

PCRN Members  

Name

Role

Affiliation

Professor Kevin Brazil

Professor of Palliative Care

Queen's University Belfast

Dr Gillian Carter Lecturer of Chronic Illness Queen's University Belfast

Professor Alice Coffey

Chair in Nursing & Midwifery

University of Limerick

Dr Michael Connolly

Lecturer/Assistant Professor

School of Nursing, Midwifery and Health Systems, University College Dublin

Dr Nicola Cornally

Lecturer Practitioner

School of Nursing and Midwifery, University College Cork

Dr Frank Doyle

Senior Lecturer in Psychology

RCSI

Professor Donna Fitzsimmons

Head of School

School of Nursing and Midwifery, Queen's University Belfast

Dr Eilionóir Flynn

Senior Lecturer & Deputy Director,

Centre for Disability Law and Policy, National University of Ireland, Galway

Dr Geraldine Foley

Assistant Professor, Occupational Therapy

Trinity College Dublin

Professor Stephen Gallagher Professor of Psychology Psychology Department, University of Limerick

Dr Suzanne Guerin

Associate Professor

School of Psychology, University College Dublin

Dr Felicity Hasson

Senior Lecturer

School of Nursing, Ulster University

Dr Geralyn Hynes

Associate Professor/ Director of Research

School of Nursing & Midwifery, Trinity College Dublin

Dr Gail Johnston

Programme Manager

Public Health Agency

Professor George Kernohan

Professor of Health Research

Institute of Nursing and Health Research, Ulster University

Dr Gemma Kiernan

Academic Staff – Psychotherapy, Nursing and Human Sciences

School of Nursing and Human Sciences, Dublin City University

Professor Gerard Leavey

Director of the Bamford Centre for Mental Health and Wellbeing

School of Psychology, Ulster University

Professor Kathleen Lynch

Professor of Equity Studies

School of Social Justice, University College Dublin

Dr Peter May

Research Fellow (Public Health & Primary Care)

Trinity College Dublin

Professor Mary McCarron

Dean of Faculty of Health Sciences

School of Nursing & Midwifery, Trinity College Dublin

Dr Noeleen McCorry

Lecturer

School of Medicine, Dentistry and Biomedical Sciences, Queen's University Belfast

Professor Sonja McIlfatrick

Head of School of Nursing

Institute of Nursing and Health Research, Ulster University

Dr Regina McQuillan

Consultant in Palliative Medicine

St Francis Hospice

Dr David Meagher

Professor of Psychiatry

University of Limerick

Dr Helen Noble

Professor of Palliative Care

Queen's University Belfast

Professor Charles Normand

Chair in Nursing & Midwifery

University of Dublin Trinity College

Dr Peter O'Halloran

Lecturer/Assistant Professor

School of Nursing & Midwifery, Queen's University Belfast

Prof Eamon O'Shea

Personal  Professor

National University of Ireland, Galway

Dr Carole Parsons

Senior Lecturer

School of Pharmacy, Queen's University Belfast

Professor Sheila Payne

Head of School

Department of Health Research, Lancaster University

Professor Joanne Reid

Professor

School of Nursing & Midwifery, Queen's University Belfast

Professor Karen Ryan

UCD Clinical Professor/ Consultant in Palliative Medicine

University College Dublin and St Francis Hospice

Dr Ann Sheridan

Associate Professor

School of Nursing and Midwifery and Health Systems, University College Dublin

Professor Anthony Staines

Professor

School of Nursing & Human Sciences, Dublin City University

Dr Suzanne Timmons

Associate Professor

Centre for Gerontology and Rehabilitation, University College Cork

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