Publications

This page contains links to publications produced by members of the PCRN. If you are a member of the PCRN and would like to have one of your publications added to the page please contact Marie McKeon: mmckeon@aiihpc.org 


(2019) Subjective and Objective Assessment of Taste and Smell Sensation in Advanced Cancer.

Authors: McGettigan N, Dhuibhir PU, Barrett M, Sui J, Balding L, Higgins S, O'Leary N, Kennedy A, Walsh D.

(2019) Condition-Specific Pamphlets to Improve End-of-life Communication in Long-term Care: Staff Perceptions on Usability and Use.

Authors: Sussman T, Kaasalainen S, Lee E, Akhtar-Danesh N, Strachan PH, Brazil K, Bonifas R, Bourgeois-Guérin V, Durivage P, Papaioannou A, Young L.

(2019) International reflections on caring for people with advanced dementia.

Authors: Yumoto Y, Kernohan WG, Morioka N, Ogata Y.

(2019) A Scoping Review to Map Empirical Evidence Regarding Key Domains and Questions in the Clinical Pathway of Delirium in Palliative Care.

Authors: Lawlor PG, Rutkowski NA, MacDonald AR, Ansari MT, Sikora L, Momoli F, Kanji S, Wright DK, Rosenberg E, Hosie A, Pereira JL, Meagher D, Rice J, Scott J, Bush SH.

(2019) Predicting admission to long-term care and mortality among community-based, dependent older people in Ireland.

Authors: Aspell N, O'Sullivan M, O'Shea E, Irving K, Duffy C, Gorman R, Warters A..

(2019) A Technological Review of Wearable Cueing Devices Addressing Freezing of Gait in Parkinson's Disease.

Authors: Sweeney D, Quinlan LR, Browne P, Richardson M, Meskell P, ÓLaighin G..

(2019) Meeting the Needs of People Who Identify as Lesbian, Gay, Bisexual, Transgender, and Queer in Palliative Care Settings.

Authors: Higgins A, Hynes G.

(2019) Interventions in pain management for persons with an intellectual disability.

Authors: Doody O, Bailey ME.

(2019) How best to support individuals with IDD as they become frail: Development of a consensus statement.

Authors: Ouellette-Kuntz H, Martin L, Burke E, McCallion P, McCarron M, McGlinchey E, Sandberg M, Schoufour J, Shooshtari S, Temple B.

(2019) Inadequate Communication Exacerbates the Support Needs of Current and Bereaved Caregivers in Advanced Heart Failure and Impedes Shared Decision-making.

Authors: Fitzsimons D, Doherty LC, Murphy M, Dixon L, Donnelly P, McDonald K, McIlfatrick S.

(2019) Key components of knowledge transfer and exchange in health services research: Findings from a systematic scoping review.

Authors: Prihodova L, Guerin S, Tunney C, Kernohan WG.

(2019) Dementia in older people admitted to hospital: An analysis of length of stay and associated costs.

Authors: Ahern S, Cronin J, Woods N, Brady NM, O'Regan NA, Trawley S, Timmons S.

(2019) Quality indicators for Palliative Day Services: A modified Delphi study.

Authors: McCorry NK, O'Connor S, Leemans K, Coast J, Donnelly M, Finucane A, Jones L, Kernohan WG, Perkins P, Dempster M..

(2019) A Scoping Review to Map Empirical Evidence Regarding Key Domains and Questions in the Clinical Pathway of Delirium in Palliative Care.

Authors: Lawlor PG, Rutkowski NA, MacDonald AR, Ansari MT, Sikora L, Momoli F, Kanji S, Wright DK, Rosenberg E, Hosie A, Pereira JL, Meagher D, Rice J, Scott J, Bush SH.

(2019) The rejection of capacity assessments in favor of respect for will and preferences: the radical promise of the UN Convention on the Rights of Persons with Disabilities.

Authors: Flynn E.

(2019) Implementing an arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis: a feasibility study protocol.

Authors: Carswell C, Reid J, Walsh I, McAneney H, Noble H.

(2019) Caregivers' perspectives and experiences of withdrawing acetylcholinesterase inhibitors and memantine in advanced dementia: a qualitative analysis of an online discussion forum.

Authors: Parsons C, Gamble S.

(2019) Evaluating Hospital Readmissions for Persons With Serious and Complex Illness: A Competing Risks Approach.

Authors: May P, Garrido MM, Del Fabbro E, Noreika D, Normand C, Skoro N, Cassel JB.

(2019) Using artificial intelligence to assess clinicians' communication skills.

Authors: Ryan P, Luz S, Albert P, Vogel C, Normand C, Elwyn G.

(2019) Informational needs of family caregivers of people with intellectual disability who require palliative care: a two-phase integrative review of the literature.

Authors: McKibben L, Brazil K, Hudson P, McLaughlin D.

(2019) Communicating with Adolescents and Young Adults about Cancer-Associated Weight Loss.

Authors: Reid J, McKeaveney C, Martin P.

(2019) Nursing people with intellectual disability and dementia experiencing pain: An integrative review.

Authors: Dillane I, Doody O.

(2019) Investigating the healthcare utilisation and other support needs of people with young-onset dementia.

Authors: Tan B, Fox S, Kruger C, Lynch M, Shanagher D, Timmons S.

(2018) Condition-Specific Pamphlets to Improve End-of-life Communication in Long-term Care: Staff Perceptions on Usability and Use.

Authors: Sussman T, Kaasalainen S, Lee E, Akhtar-Danesh N, Strachan PH, Brazil K, Bonifas R, Bourgeois-Guérin V, Durivage P, Papaioannou A, Young L..

(2018) International reflections on caring for people with advanced dementia.

Authors: Yumoto Y, Kernohan WG, Morioka N, Ogata Y.

(2018) Ethical issues in nursing home palliative care: a cross-national survey.

Authors: Muldrew DHL, Kaasalainen S, McLaughlin D, Brazil K.

(2018) A scoping review to map empirical evidence regarding key domains and questions in the clinical pathway of delirium in palliative care.

Authors: Lawlor PG, Rutkowski NA, MacDonald AR, Ansari MT, Sikora L, Momoli F, Kanji S, Wright DK, Rosenberg E, Hosie A, Pereira JL, Meagher D, Rice J, Scott J, Bush SH.

(2018) A randomised controlled pilot and feasibility study of music therapy for improving the quality of life of hospice inpatients.

Authors: Porter S, McConnell T, Graham-Wisener L, Regan J, McKeown M, Kirkwood J, Clarke M, Gardner E, Dorman S, McGrillen K, Reid J.

(2018) Quality indicators for Palliative Day Services: A modified Delphi study.

Authors: McCorry NK, O'Connor S, Leemans K, Coast J, Donnelly M, Finucane A, Jones L, Kernohan WG, Perkins P, Dempster M.

(2018) Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities.

Authors: Duggleby W, Jovel Ruiz K, Ploeg J, McAiney C, Peacock S, Nekolaichuk C, Holroyd-Leduc J, Ghosh S, Brazil K, Swindle J, Forbes D, Woodhead Lyons S, Parmar J, Kaasalainen S, Cottrell L, Paragg J.

(2018) Findings From a Thematic Synthesis of Key Messages From a Palliative Care Research Network: The KINDLE Project.

Authors: Nicholson E, Murphy T, Larkin P, Normand C, Guerin S.

(2018) Evaluating an educational programme for dignity care intervention with community nurses in Ireland.

Authors: Connolly M, Charnley K, Collins R, Barry C, McIlfatrick S, Larkin P, Brenner M, Johnston B.

(2018) Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives.

Authors: Donnelly S, Prizeman G, Coimín DÓ, Korn B, Hynes G.

(2018) Impairments in balance and mobility identify delirium in patients with comorbid dementia.

Authors: Gual N, Richardson SJ, Davis DHJ, Bellelli G, Hasemann W, Meagher D, Kreisel SH, MacLullich AMJ, Cerejeira J, Inzitari M, Morandi A.

(2018) Examining palliative and end of life care research in Ireland within a global context: a systematic mapping review of the evidence.

Authors: McIlfatrick S, Muldrew DHL, Hasson F, Payne S.

(2018) Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: A cross-sectional study of deceased residents in 6 EU countries (PACE).

Authors: Wichmann AB, Adang EMM, Vissers KCP, Szczerbińska K, Kylänen M, Payne S, Gambassi G, Onwuteaka-Philipsen BD, Smets T, Van den Block L, Deliens L, Vernooij-Dassen MJFJ, Engels Y; PACE consortium.

(2018) Dementia in older people admitted to hospital: An analysis of length of stay and associated costs.

Authors: Ahern S, Cronin J, Woods N, Brady NM, O'Regan NA, Trawley S, Timmons S.

(2018) Exploring Antipsychotic Prescribing Behaviors for Nursing Home Residents With Dementia: A Qualitative Study.

Authors: Walsh KA, Sinnott C, Fleming A, Mc Sharry J, Byrne S, Browne J, Timmons S.

(2018) A qualitative exploration of patient and healthcare professionals' views and experiences of palliative rehabilitation during advanced lung cancer treatment.

Authors: Payne C, McIlfatrick S, Larkin P, Dunwoody L, Gracey J.

(2018) Economic outcomes in palliative and end-of-life care: current state of affairs.

Authors: May P, Cassel JB.

(2018) Quality Care for People with Intellectual Disability and Advanced Dementia: Guidance on Service Provision.

Authors: McCarron M, McCallion P, Watchman K, Janicki MP, Coppus A, Service K, Fortea J, Hogan M, Reilly E, Stemp S.

(2018) Quality of Life Trends in People With and Without Cancer Referred to Volunteer-Provided Palliative Care Services (ELSA): A Longitudinal Study.

Authors: Walshe C, Preston N, Payne S, Dodd S, Perez Algorta G.

(2018) Philanthropy and dementia care in Ireland.

Authors: Carney P, O'Shea E.

(2018) Ageing and dying in the contemporary neoliberal prison system: Exploring the 'double burden' for older prisoners.

Authors: Turner M, Peacock M, Payne S, Fletcher A, Froggatt K.

(2018) Advance Care Planning With Patients Who Have End-Stage Kidney Disease: A Systematic Realist Review.

Authors: O'Halloran P, Noble H, Norwood K, Maxwell P, Shields J, Fogarty D, Murtagh F, Morton R, Brazil K.

(2018) Facilitating transition from children's to adult services for young adults with life-limiting conditions (TASYL): Programme theory developed from a mixed methods realist evaluation.

Authors: Kerr H, Price J, Nicholl H, O'Halloran P.

(2018) The palliative care knowledge of nursing home staff: The EU FP7 PACE cross-sectional survey in 322 nursing homes in six European countries.

Authors: Smets T, Pivodic L, Piers R, Pasman HRW, Engels Y, Szczerbińska K, Kylänen M, Gambassi G, Payne S, Deliens L, Van den Block L.

(2018) "A tool doesn't add anything". The importance of added value: Use of observational pain tools with patients with advanced dementia approaching the end of life-a qualitative study of physician and nurse experiences and perspectives.

Authors: De Witt Jansen B, Brazil K, Passmore P, Buchanan H, Maxwell D, McIlfatrick S, Morgan SM, Watson M, Parsons C.

(2018) How best to support individuals with IDD as they become frail: Development of a consensus statement.

Authors: Ouellette-Kuntz H, Martin L, Burke E, McCallion P, McCarron M, McGlinchey E, Sandberg M, Schoufour J, Shooshtari S, Temple B.

(2018) Ethical issues experienced during palliative care provision in nursing homes.

Authors: Muldrew Née Preshaw DHL, McLaughlin D, Brazil K.

(2018) Barriers and facilitators to knowledge transfer and exchange in palliative care research.

Authors: Kernohan WG, Brown MJ, Payne C, Guerin S.

(2018) General practitioners' knowledge, attitudes, and experiences of managing behavioural and psychological symptoms of dementia: A mixed-methods systematic review.

Authors: Jennings AA, Foley T, Walsh KA, Coffey A, Browne JP, Bradley CP.

(2018) Healthcare use, costs and quality of life in patients with end-stage kidney disease receiving conservative management: results from a multi-centre observational study (PACKS).

Authors: Phair G, Agus A, Normand C, Brazil K, Burns A, Roderick P, Maxwell AP, Thompson C, Yaqoob M, Noble H.

(2018) Developing palliative care programs in Indigenous communities using participatory action research: a Canadian application of the public health approach to palliative care.

Authors: Kelley ML, Prince H, Nadin S, Brazil K, Crow M, Hanson G, Maki L, Monture L, Mushquash CJ, O'Brien V, Smith J.

(2018) Providing Palliative Care in Rural Nepal: Perceptions of Mid-Level Health Workers.

Authors: Gongal RN, Upadhyay SK, Baral KP, Watson M, Kernohan GW.

(2018) Development and Initial Psychometric Properties of a Questionnaire to Assess Competence in Palliative Care: Palliative Care Competence Framework Questionnaire.

Authors: Connolly M, McLean S, Guerin S, Walsh G, Barrett A, Ryan K.

(2018) Patient and Professional Factors That Impact the Perceived Likelihood and Confidence of Healthcare Professionals to Discuss Implantable Cardioverter Defibrillator Deactivation in Advanced Heart Failure: Results From an International Factorial Survey.

Authors: Hill L, McIlfatrick S, Taylor BJ, Jaarsma T, Moser D, Slater P, McAloon T, Dixon L, Donnelly P, Stromberg A, Fitzsimons D.

(2018) Economics of Palliative Care for Hospitalized Adults With Serious Illness: A Meta-analysis.

Authors: May P, Normand C, Cassel JB, Del Fabbro E, Fine RL, Menz R, Morrison CA, Penrod JD, Robinson C, Morrison RS.

(2018) General practitioners' knowledge, attitudes and experiences of managing behavioural and psychological symptoms of dementia: protocol of a mixed methods systematic review and meta-ethnography.

Authors: Jennings AA, Foley T, Walsh KA, Coffey A, Browne JP, Bradley CP.

(2018) Evaluation of the impact of telementoring using ECHO© technology on healthcare professionals' knowledge and self-efficacy in assessing and managing pain for people with advanced dementia nearing the end of life.

Authors: De Witt Jansen B, Brazil K, Passmore P, Buchanan H, Maxwell D, McIlfatrick SJ, Morgan SM, Watson M, Parsons C.

(2018) The experiences and preparedness of family carers for best interest decision-making of a relative living with advanced dementia: A qualitative study.

Authors: Carter G, McLaughlin D, Kernohan WG, Hudson P, Clarke M, Froggatt K, Passmore P, Brazil K.

(2018) A Palliative Radiation Oncology Consult Service Reduces Total Costs During Hospitalization.

Authors: Chang S, May P, Goldstein NE, Wisnivesky J, Ricks D, Fuld D, Aldridge M, Rosenzweig K, Morrison RS, Dharmarajan KV.

(2018) A qualitative exploration of proxy decision makers' expectations of prescribed medications for people with advanced dementia.

Authors: McCloskey B, Hughes C, Parsons C.

(2018) Music therapy in UK palliative and end-of-life care: a service evaluation.

Authors: Graham-Wisener L, Watts G, Kirkwood J, Harrison C, McEwan J, Porter S, Reid J, McConnell TH.

(2018) Establishing a clinical phenotype for cachexia in end stage kidney disease - study protocol.

Authors: Reid J, Noble HR, Adamson G, Davenport A, Farrington K, Fouque D, Kalantar-Zadeh K, Mallett J, McKeaveney C, Porter S, Seres DS, Shields J, Slee A, Witham MD, Maxwell AP.

(2018) Assessment and management of constipation for patients receiving palliative care in specialist palliative care settings: A systematic review of the literature.

Authors: Muldrew DH, Hasson F, Carduff E, Clarke M, Coast J, Finucane A, Graham L, Larkin P, McCorry NK, Slater P, Watson M, Wright E, McIlfatrick S.

(2018) The impact of life story work on person-centred care for people with dementia living in long-stay care settings in Ireland.

Authors: Cooney A, O'Shea E.

(2018) Longitudinal predictors of caregiver burden in amyotrophic lateral sclerosis: a population-based cohort of patient-caregiver dyads.

Authors: Burke T, Hardiman O, Pinto-Grau M, Lonergan K, Heverin M, Tobin K, Staines A, Galvin M, Pender N.

(2018) The supportive relationship between palliative patients and family caregivers.

Authors: Foley G.

(2018) Family care conferences in long-term care: Exploring content and processes in end-of-life communication.

Authors: Durepos P, Kaasalainen S, Sussman T, Parker D, Brazil K, Mintzberg S, Te A.

(2018) A Call for Integrated and Coordinated Palliative Care.

Authors: Brazil K.

(2018) When Less Is More: Optimizing Care for Elderly Patients Failing to Thrive on Dialysis.

Authors: O'Riordan J, Kane PM, Noble H, Beatty S, Mannion E, Murtagh C, Harnett I, Smyth A.

(2018) 'The importance of planning for the future': Burden and unmet needs of caregivers' in advanced heart failure: A mixed methods study.

Authors: McIlfatrick S, Doherty LC, Murphy M, Dixon L, Donnelly P, McDonald K, Fitzsimons D.

(2018) A Palliative Radiation Oncology Consult Service's Impact on Care of Advanced Cancer Patients.

Authors: Chang S, May P, Goldstein NE, Wisnivesky J, Rosenzweig K, Morrison RS, Dharmarajan KV.

(2018) Formal carers providing end-of-life care and bereavement support to people with intellectual disabilities have unmet learning needs.

Authors: McLaughlin D.

(2018) Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study.

Authors: Kane PM, Ellis-Smith CI, Daveson BA, Ryan K, Mahon NG, McAdam B, McQuillan R, Tracey C, Howley C, O'Gara G, Raleigh C, Higginson IJ, Murtagh FE, Koffman J; BuildCARE.

(2018) Ethical issues in palliative care for nursing homes: Development and testing of a survey instrument.

Authors: Preshaw DH, McLaughlin D, Brazil K.

(2018) Shared decision-making at the end of life: A focus group study exploring the perceptions and experiences of multi-disciplinary healthcare professionals working in the home setting.

Authors: Brogan P, Hasson F, McIlfatrick S..

(2018) Validation of the 6-Item Cognitive Impairment Test and the 4AT test for combined delirium and dementia screening in older Emergency Department attendees.

Authors: O'Sullivan D, Brady N, Manning E, O'Shea E, O'Grady S, O 'Regan N, Timmons S.

(2018) Living and dying with advanced dementia: A prospective cohort study of symptoms, service use and care at the end of life.

Authors: Sampson EL, Candy B, Davis S, Gola AB, Harrington J, King M, Kupeli N, Leavey G, Moore K, Nazareth I, Omar RZ, Vickerstaff V, Jones L.

(2018) The experience of palliative care service provision for people with non-malignant respiratory disease and their family carers: An all-Ireland qualitative study.

Authors: Mc Veigh C, Reid J, Larkin P, Porter S, Hudson P.

(2018) Does Modality Matter? Palliative Care Unit Associated With More Cost-Avoidance Than Consultations.

Authors: May P, Garrido MM, Del Fabbro E, Noreika D, Normand C, Skoro N, Cassel JB.

(2018) Decision-making among patients and their family in ALS care: a review.

Authors: Foley G, Hynes G.

(2018) Effectiveness of advance care planning with family carers in dementia nursing homes: A paired cluster randomized controlled trial.

Authors: Brazil K, Carter G, Cardwell C, Clarke M, Hudson P, Froggatt K, McLaughlin D, Passmore P, Kernohan WG.

(2018) The role of hospice in the transition from hospital to home for technology-dependent children-A qualitative study.

Authors: Price J, McCloskey S, Brazil K.

(2018) Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study.

Authors: Kane PM, Murtagh FEM, Ryan KR, Brice M, Mahon NG, McAdam B, McQuillan R, O'Gara G, Raleigh C, Tracey C, Howley C, Higginson IJ, Daveson BA; BuildCARE.

(2018) Mothers' perspectives of the experience and impact of caring for their child with a life‐limiting neurodevelopmental disability

Authors: Courtney, E., Kiernan, G., Guerin, S., Ryan, K., and McQuillan, R.

(2018) Key components of knowledge transfer and exchange in health services research: Findings from a systematic scoping review

Authors: Prihodova, L., Guerin, S., Tunney, C., and Kernohan, W.G.

(2018) Inadequate Communication Exacerbates the Support Needs of Current and Bereaved Caregivers in Advanced Heart Failure and Impedes Shared Decision-making

Authors: Fitzsimons, D., Doherty, L.C., Murphy, M., Dixon, L., Donnelly, P., McDonald, K., and McIlfatrick, S.

(2018) Healthcare use, costs and quality of life in patients with end-stage kidney disease receiving conservative management: results from a multi-centre observational study (PACKS)

Authors: Phair, G., Agus, A., Brazil, K., Burns, A., Hallahan, S., Normand, C., Roderick, P., Maxwell, AP., Yaqoob, MM., and Noble, H.

(2018) The supportive relationship between palliative patients and family caregivers

Author: Foley, G.

(2018) Decision-making among patients and their family in ALS care: a review

Authors: Foley, G., and Hynes, G.

(2018) Evaluating an educational programme for dignity care intervention with community nurses in Ireland

Authors: Connolly, M., Charnley, K., Collins, R., Barry, C., McIlfatrick, S., Larkin, P., Brenner, M., and Johnston, B.

(2018) Quality indicators for Palliative Day Services: A modified Delphi study

Authors: McCorry, N., O’Connor, S., Leemans, K., Coast, J., Donnelly, M., Finucane, A., Jones, L., Kernohan, W.G., Perkins, P., and Dempster, M.

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