Glancing Back, Thinking Forward: End of Life Care Planning for People with Intellectual Disabilities

End of life care planning enables the person to feel an element of autonomy and control regarding their own death and will increase the likelihood that the person’s wishes are respected as they approach the end of their life. However, engaging people with intellectual disabilities in end of life planning is not common practice. Below is a guide to support carers to facilitate end of life conversations with people with intellectual disabilities. This is accompanied by an easy read information sheet to help people with intellectual disabilities to think, talk, write and review the care and treatment they want as they approach the end of their life. These wishes can then be written and recorded in the accessible end of life planning tool.

Accessible Planning Tool

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