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Improving Outcomes in Children and Young People with Cancer

The purpose of this guidance is to provide recommendations on service provision for children and young people with malignant disease, based on the best available evidence. It is primarily for commissioners of services, but has equal relevance for service providers.

There are many other current national initiatives of relevance, not least national service frameworks (NSFs) and other Improving Outcomes guidance; care has been taken not to duplicate this work, but adherence to such guidance is expected. The guidance also assumes compliance with the relevant national guidelines on the administration/management of therapies (see Appendix 1) and any relevant legal frameworks.

The population, healthcare settings, and services and key areas of clinical management are included in detail in the Scope (see Appendix 2). The guidance covers children from birth and young people in their late teens and early twenties presenting with malignant disease, and the whole range of NHS services required to meet their needs. These needs are influenced by a complex interaction between the condition, stage in the care pathway and individual maturity. The guidance has not used a specific upper age limit in the recommendations, other than for the children’s NSF, recognising that any such limit would be arbitrary and that services should be appropriate for individual needs.

Link to guidelines: Improving Outcomes in Children and Young People with Cancer

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