Palliative Care Needs Assessment for Children
Palliative care services currently provided to children in Ireland with life-limiting conditions are seen to be inequitable, differing significantly according to diagnosis (malignant versus nonmalignant) and according to geographic location. This poses challenges, particularly for parents of children with non-malignant diseases.
This research aims to describe the situation of children with life-limiting illnesses nationwide. The completed work represents a mandate to develop a menu of supports involving many different professionals. It clearly articulates the preference for children to be cared for at home and the range of physical, medical, nursing, psycho-social and practical help required in order for this to happen – including the need for respite care and family support.