Evaluation of the Implementation and use of a Patient Healthcare Passport in Specialist Palliative Care Contexts October
This study looked at the use of a patient held passport in the specialist palliative care setting.
In 2011, in response to recommendations contained in the regional palliative care strategy for Northern Ireland (NI) (DHSPSSNI, 2010), the Royal College of General Practitioners (RCGPs) in NI were commissioned by the Public Health Agency (PHA) to create a Patient Held Record (PHR) for use by patients with progressive, life-limiting illness and by their families and carers. Following a pilot process, the Passport was entitled, ‘What I Need You to Know: A Health and Care Record for Me, My Family and Carers: My Healthcare Passport’ and was launched in January 2014. In order to know whether or not it should be used in patients with specialist palliative care needs, there is a need to understand if it is acceptable and useful for people with these needs.